Question
I have a family friend with Cornelia Delang Syndrome.  What can you tell me about this disease and how might I access information on the net concerning this disease!


Answer
Hello Geneva,

A good resource is the CdLS- USA Foundation. http://www.cdlsusa.org/

Also, feel free to contact Kris Madore at Crotched Mountain Rehabilitation Center. She currently serves two children who have the diagnosis of Cornelia de Lange Syndrome. You can email her at Kris.Madore@CrotchedMountain.org (tell her I sent you).

Hope that helps!

Jon Eriquezzo
All-Experts.com